Monday, April 2, 2012
A Question of Faith
The first time I was diagnosed was two years ago this month. It didn't really sink in right away, because the tumor in my chest was pushing on my heart. The next day I had to go to Christians Hospital and they did some echo's which showed the tumor was causing the sac around my heart to be ten times the size it should be. So the very next day they performed whats called a paracardio window to drain the fluid and then later that night they transferred me to Barnes. So I didn't go through the shock that most people do when finding out they have cancer because when I found out, it was like a whirlwind of action and I didn't have time to think about it.
I ended up getting a bone marrow transplant in October of that year.(2010) Went through many Dr. appointments over the following months where my blood counts kept coming back fine and everything looked good. Then one night in July I had a terrible couging fit where I was coughing up stuff into my trash can. I finished coughing rolled over and went back to sleep. When I woke up I looked in the can and it was filled with blood. Contacted my Oncologist and she got me in that day for a CT scan to see what the problem was. They had me waiting after the scan to get the results and my Doc came down and pulled me into a side room. She told me that my tumor had reactivated and I needed to be admitted the next day. This time finding out, after assuming that everything was gonna be ok because the transplant is supposed to cure you, it hit me like a giant punch in the stomach. So much so that as I was leaving, I had to stop and throw up in one of the plastic plants they have on the 3rd floor of the CAM (my bad Barnes, you can bill me for it). I even threw up when I got out to the parking garage. Next day I was admitted and started radiation and chemo. Once done it had knocked the tumor into submission, and the only thing left was to undergo a series of 3 DLI's (Donor Lymphocyte Infusions). They are done in order to jump start the bone marrow transplant and have it hopefully get back to work and finish off the lymphoma. I had my last DLI on January 6 of this year. All my follow up appointments and blood counts were going good.
But we all know what happened next, I got a viral infection and they gave me another CT scan and found that the tumor in my chest was still with lymphoma and they also found new masses under my arm, in between my diaphragm and lung, and in my stomach. So I'm nearing a month in the hospital but should be released soon.
However, I'm just giving you background information. I have been mulling this column idea over and over in my head for well over a week now. It's a question I've mulled over for nearly two years now. The question that I've been asking myself and struggling with is, "what should I say or do as an atheist when people tell me they are praying for me or that I'm on their prayer list"? If you've ever been seriously hurt or ill, or had a loved one who was sick, then you know how often people say these types of things to you.
I originally would always just nod and say thank you. I always felt a little awkward because I appreciated it even though I don't share their faith, but I felt like I was wasting peoples time. If God is real and I am a nonbeliever are they wasted prayers? Could that time be spent on someone more worthy than me?
Recently I've had a sort of epiphany. When someone tells you they are praying for you, I realized that, that is literally the nicest possible thing they can do for you. If a person believes and God and the power of prayer, praying for someone is better than anything else people can do for you. So I no longer nod my head ad say thanks, i thank them profusely and if it's in person I'll give them a big old hug. My personal beliefs still haven't changed, but I think that now I have a greater understanding of what it really means to have someone praying for you. I do continue to explore the bible and religious websites, almost nightly I try a little prayer hoping that maybe I will feel something that changes my belief. So far that has not happened. i also want to state that if things don't go my way I will not be a death bed convert, I think if God exists he would see that as someone just trying to hedge their bets.
I guess what I want to say to everyone, I truly appreciate your prayers regardless of my personal beliefs. I understand what it means to you, and that makes it mean the world to me. So my sincere thanks to everyone who has me on a prayer list.
Fred
P.S. tomorrow we will try to get back on the funny train, I've got a few stories from the weekend, but I was having such problems with my hands I coudn't even try to type.
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So very well said! I am so touched by your story, and can't believe you remain as funny and upbeat as I remember in high school. Every time I read a blog post or something you post on FB or Twitter I immediately feel guilty for whatever I've complained about earlier in the day(there's always something). Thanks again for sharing your story. Let me know if there is ever something I can do for you.
ReplyDeletePS. I have an appointment for myself in the centers for advanced Medicine building coming up. Are you still in that building? If you're not home by then and I dont have to go back to work afterwards, I might have time to stop by. Could I bring you anything?
I am still in the CAM. But they just told me I'm going home on Wednesday for sure. If your appointment is tomorrow, you could come by and say hi! I don't need a thing. I've got snacks and Gatorade stashed away!
ReplyDeleteNah, My appointment is on Wednesday afternoon. Glad you'll be going home. I'm there on a somewhat regular basis. Hopefully you are done with that place, but if not, I might catch you the next time.
DeleteWell I'm here a lot at the Siteman center for Doctor appointment and blood draws. At least once a week. And if I have to do outpatient chemo then I'll be here a couple times a week.
DeleteI just wanted to share my dad's favorite verse while he was battling everything he went through...
ReplyDelete"I have fought the good fight, I have finished the race, I have kept the faith. 2 Timothy 4:7"
Beliefs in God aside, keep faith in yourself!
You are an amazing person. And you have touched so many people's lives just by being open, honest, and of course keeping a sense of humor about what you are going through. Luv ya babe.
Your dad was one amazing dude. Thanks Kristin, I plan on keeping faith in myself at all times.
DeleteAwesome. Sort of funny after that book link I sent ya, but glad things r lookin up....YOU KNOW WHAT IM GONNA SAY NEXT! :-)
ReplyDeleteI know my brother. I just wish there were some women who want to get their hands on me as bad as you do! (he's a Dr. Of Chiropractic people, leave the homo jokes at home!)
DeleteFreddy.. in the 9 years I've known you I don't think your words have ever led me to tears (unless it was from laughing too damn hard :)). I, like you, am an atheist and struggled with what to say when someone wants to pray for me. I came to the same conclusion as you... it has to be the nicest, most caring thing a person who believes can do for you. And I agree with above.. keep faith in yourself and keep faith that you will beat this damn thing for once and for all. So glad you're getting out and can't wait to see you and give you a giant hug!
ReplyDeleteThanks Susie Q, even if I hit the Wednesday release date, I'm gonna skip Rito this week. I need to stay home for several days while my immune system keeps recovering. But next Thursday I'm broadcasting the Kahok Baseball game then heading to the Rito! Game should be over in plenty of time.
DeleteThat's good news... I didn't expect you this week, but will enjoy your presence next! Stay healthy!
DeleteVery touching and personal. My Bestie is an atheist and she was always polite when I would offer prayer. I didn't even know she was one bc she never was disrespectful to my beliefs. I believe that you will get through this. I also believe that your story is a model for others. There are not many people that can experience what you have gone through and still smile. You inspire me.
ReplyDeleteThanks Tiffany, I always get mad when atheists try to mock people of faith, I try to not do that and I'm glad your friend doesn't do that. I've had several groups of visitors that before they left asked if I minded if they had a prayer. Ive accepted every time. Again it's not my belief but it's very therapeutic to know that people care so deeply. Extremely humbling.
DeleteQuoting Fred Fierce: "Could that time be spent on someone more worthy than me?" There isn't anyone more worthy than you. Worthiness is based on "just because." I am not worthy on any level; I am just a sinner saved by Grace. Your gracious attitude in accepting the offer of prayers is a blessing to those who offer, Fred. It makes you even more awesome than when I first met you in my classroom with the little bitty girl in the wheelchair.
ReplyDeleteI miss her, she was the toughest coolest kid I've ever met. She's one of the reasons for my non faith. That's not fair for a child to be born like that. Just like the children's oncology wing. How do u explain to a 5 year old what leukemia is, and why they have to have treatments that make them feel even more sick.
DeleteWell said Fred!! Keep your head held high! Anything is possible-- I mean, let's think about it! Cardinals win the world series after being 10 games out!! The Kahok basketball team makes it to the playoffs!! We had a record breaking weather pattern for the month of March! The odds are in your favor!! Stay strong! But know that someone is watching down on you--- Cory Wilson!!!! We all my have different beliefs, but one thing is for sure-- we all believe in YOU!!
ReplyDeleteThanks Kristen, I think about his big ass a lot! When I first got sick I always imagine what he would say. A mixture of cursing and motivating I can only imagine.
DeleteThis is a very bold statement. I commend you for speaking so candidly about being atheist. Even if you aren't a religious person, I hope you can feel the energy and love that your friends are sending you when they say they are praying for you. And you show love for them by receiving their love and graciousness. I can't wait to read more
ReplyDeleteSincerely, Caren Evers (Clark's sister)
I definitely feel it Caren. Your brother is my best friend in the world and him and Sarah have been so great and helpful through all this.
DeleteI don't consider it bold, it's something I've wanted to write for a very long time. And it's an issue I think about daily, without fail. After I finished the column I was a little mad at myself because if you go by the definitions I'm an agnostic not an atheist, but that's splitting hairs. Thanks for taking time to read it Caren.
And u didn't have to put Clark's sister! I have terrible memory loss from the treatments, but I don't forget the people important to me and their families. :)